At the recent IConS XI 2024 conference, the PIECEs Project of SCARF (Schizophrenia Research Foundation) made a significant mark by showcasing their groundbreaking work. What made this dissemination particularly unique was that the service users themselves played a central role, actively engaging with delegates to explain the project’s various components.
As one walked into the exhibit space, the atmosphere was alive with interaction and conversations, but what truly stood out was seeing the service users confidently leading discussions. These individuals had been involved in different parts of the project, and now, they were in charge of presenting them. Whether it was the Randomized Control Trials (RCTs), Quality Improvement Workshops, or more creative aspects like the SALT (Stimulate/Share, Appreciate, Learn, and Transfer) workshops and the innovative use of community engagement through the Theatre of the Oppressed, the service users took ownership of their narratives. They eloquently explained each aspect, from the Namma Area initiative (a social hangout space for service users) to the visually powerful Photovoice Exhibit, engaging visitors with insights that only someone with lived experience could offer.
As part of their presentation, they didn’t just speak to the delegates—they also asked thought-provoking questions. These questions weren’t just about the project but aimed to spark deeper reflection among the visitors, such as how they might involve service users in their workplace settings, an idea that emerged from the service users. This exchange turned the exhibit from a one-way dissemination into an interactive, reflective dialogue.
When asked about their personal experience participating in the dissemination, the service users spoke of how transformative it had been. For many, it was the first time taking up a leadership role in such a public forum. They shared how explaining the project, answering questions, and even presenting challenges faced by people with mental health conditions had a profound impact on their self-esteem. This involvement, they said, boosted their confidence and gave them a renewed sense of purpose, showcasing not only their knowledge but also their resilience.
The PIECEs Project presentation wasn’t just about sharing information it was a living example of empowerment. It gave a voice to those who are often spoken for, and in doing so, it highlighted the importance of including service users in mental health initiatives. Through their participation, the service users transformed from beneficiaries to advocates and leaders, leaving both themselves and the delegates with a lasting impression of the true power of lived experience.
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