Paper Published: Frontiers of Psychiatry
We are happy and pleased to share PIECEs first paper publication: Implementing psychosocial interventions within low and middle-income countries to improve community-based care for people with psychosis—A situation analysis.
You can read the full piece on the Frontiers of Psychiatry website here
PIECEs Small Scale Research Grants – Call open in India!
The Small Scale Research Grants is offered as part of the programme for research capacity building and community engagement development of the PIECEs research, a collaborative research that aims to explore, adapt, and test a low-cost, app-based approach (DIALOG+) that makes use of existing resources to improve community-based care for patients with psychosis and reduce the need for institutionalisation. The overall aim of PIECEs is to improve the quality of community-based care for people with psychosis in India and Pakistan by adapting and testing this approach, and up-scaling through the use of participatory arts methodologies and community engagement. For more on the research, access our website: piecesresearch.com
Thank you for showing interest in applying for the PIECEs Small Scale Research Grant. Make sure you read the guidelines before you apply. Please fill in the application form below along with the project proposal, completed budget (template attached) and submit with your CV (2 pages max; CV should give details of previous research experience, if any) to Dr. Padmavati (padmavati@scarfindia.org).
Download Application form and budget template here.
The research is funded by the NIHR (National Institute for Health Research in the United Kingdom) and is led by Queen Mary University of London (UK), Interactive Research and Development – IRD (Karachi, Pakistan) and Schizophrenia Research Foundation – SCARF (Chennai, India), in partnership with Aga Khan University and People’s Palace Projects
Who can apply to this grant
The Small Scale Grants is open to support individual or collectives who work as academicians, researchers, health workers, clinicians and persons with lived experienced who are currently working/partnering with SCARF. We encourage particularly researchers, health workers, practitioners and facilitators on early career or junior positions.
Nature of proposals
The aim of this grant is to help develop and strengthen the skills, instincts, abilities, processes and resources of early career researchers to adapt, and grow in the areas of research, clinical, community engagement, community care of people with experience of psychosis, their carers and health workers.
Research Proposals focussing on psychoses are invited from Early Career Researchers in the fields of Mental Health, Arts and Community Engagement, Health and Mental Health Evaluation, and Health Economics. Research Proposals focussing on psychoses are preferred.
Community treatment of psychosis – development of projects or resource oriented approaches that provide community day-to-day support and strengthen local awareness around people with experience of psychosis, their carers and health workers to ensure they have resources or pathways of care within their local community.
Arts, Community engagement and Mental Health – Projects or activities that enable public participation and involvement to promote relationship building through learning, action, and the expression of needs and values through the arts, culture or community led activities for people with experience of psychosis, their carers and health workers.
Evaluation methods – Proposals that enable the creation of innovative criterias, approaches and methodologies around evaluating the success of a given program or project in the field of research, clinical interventions, community engagement and the arts involving people with experience of psychosis, their carers and health care workers.
Who cannot apply for this funding scheme:
- Any funding applications from individuals or organisations not working in partnership with SCARF
- The grant will not be able to support PhD work
Funding available
The Early career research grant can support up to 6 proposals of various sizes as follows
| Size of grant (GBP) | Number available |
| 10000 | 1 |
| 5000 | 1 |
| 2500 | 4 |
Funding can be used to cover any directly allocated costs (e.g. staff and suppliers, training courses etc.), subsistence, travel, equipment and community engagement related costs.
Duration
This scheme is looking to fund projects with duration from 6 months to 18 months of delivery life. At the end of the project, partners selected via the scheme must provide a report highlighting the undertaken activities and outcomes delivered during the lifespan of the project.
Selection process
The submitted proposals will initially be evaluated by the Scientific Advisory Committee of SCARF. Proposals deemed to be suitable will then be forwarded to the PIECEs International team. The selection process will be conducted by the PIECEs Independent International Advisory Board, formed by experts and researchers from the UK, India and Pakistan. Successful applicants will be informed of the results by 20th November 2022 via email and expected to start delivery of the project from January 2023 onwards. All successful applicants will be mentored by a senior researcher from the PIECEs project international team or SCARF senior researchers.
Safeguarding
We expect applicants regardless of the type of work developed to have considered their safeguarding responsibilities and to have suitable policies and procedures in place to protect from harm people who come into contact with the project. As per guidance, if your project works with vulnerable children or adults at risk you should:
- Establish good safeguarding policies and procedures that all involve trustees, which fit with the policies and procedures of your local authority safeguarding partner or safeguarding children or adults board
- Ethics approval for projects should be submitted upon approval of the proposal within the Scheme
- Make sure all staff and volunteers receive regular training on child protection or working with adults at risk
- Manage concerns, complaints, whistleblowing and allegations relating to child protection or adults at risk effectively
Key dates
Deadline for application: 1st October 2022 (11.30 pm)
Results by email: 20th November 2022
Expected start date for projects: January 2023
Note: This research was funded by the National Institute for Health Research (NIHR) via its Research and Innovation for Global Health Transformation (RIGHT) programme. Grant number NIHR200824, using UK aid from the UK Government to support global health research.
PIECEs Small Scale Research Grants – Call open in Pakistan!
The PIECEs Small Scale Research Grant is an initiative for building research capacity and community engagement development within the ‘Improving outcomes for people with psychosis in Pakistan and India – enhancing the Effectiveness of Community-based care (PIECEs)’ research program. The overall aim of the project is to improve the quality of community-based care for people with psychosis in India and Pakistan by adapting and testing this approach, and up-scaling through the use of participatory arts methodologies and community engagement.
Make sure you read the guidelines before you apply.
Please fill in the application form below and submit with your CV (In English, 2 pages max), completed budget (template attached) and any other supporting information to the PIECEs email address pieces.pk@ird.global with the email subject “SSRG Application Submission 2022”
Download application form here.
Download budget template here.
Deadline for applications is the 30th September 2022, 11pm Pakistan time. Successful applications will be informed with the results by the 20th November 2022 via email and expected to start delivery of the project from January 2023 onwards.
The research is funded by the NIHR (National Institute for Health Research in the United Kingdom) and is led by Queen Mary University of London (UK), Interactive Research and Development – IRD (Karachi, Pakistan) and Schizophrenia Research Foundation – SCARF (Chennai, India), in partnership with Aga Khan University and People’s Palace Projects.
Who can apply to this grant
This Small Scale Research Grants scheme is locally administered by IRD Pakistan (Pvt. Ltd) and open to support individuals or collectives who work as academics, students, researchers, program implementers, health workers, clinicians and advocates who support or work in Mental Health, Arts and Community Engagement and Mental Health Evaluation in Pakistan. Proposals are invited especially from those working at grass roots local community levels and researchers with lived experience of mental health conditions, across a wide range of activities, training and or personal development, in the following areas:
Capacity building – Proposals that involve the development and strengthening of the skills, instincts, abilities, processes and resources that individuals, organisations and communities need to survive, adapt, and grow in the areas of research, clinical, community engagement, community care of people with experience of mental illness, their carers and health workers.
Community treatment of mental illness – Development of projects or resource oriented approaches that provide community day-to-day support and strengthen local awareness around people with experience of mental illness, their carers and health workers to ensure they have resources or pathways of care within their local community.
Arts, community engagement and mental health – Projects or activities that enable public participation and involvement to promote relationship building through learning, action, and the expression of needs and values through the arts, culture or community led activities for people with experience of mental illness, their carers and health workers.
Evaluation methods – Proposals that enable the creation of innovative criteria, approaches and methodologies around evaluating the success of a given program or project in the field of research, clinical interventions, economic or cost-analysis, community engagement and the arts involving people with experience of mental illness, their carers and health care workers.
Funding can be used to cover any directly allocated costs (e.g. staff and suppliers, training courses etc.), subsistence, travel, equipment and community engagement related costs.
Who cannot apply for this funding scheme:
- Any funding applications from individuals or organisations outside of Pakistan
Funding available
Stage 1
- Small-scale research projects (5 grants up to £500 for 6 months)
- Medium-scale research projects (2 grants up to £2,500 for 6 months)
Stage 2
- Applications indicating proof-of-concept in Stage 1 applications will be contacted to submit an application for a small-medium scale implementation research project of a grant amount up to £7,000 for 12 months
Successful Grants will receive direct funding from IRD Pakistan (Pvt Ltd.) upon signature of an agreement between both parties and subject to financial reporting requirements.
Duration
This scheme is looking to fund projects with duration from 6 months to 12 months of delivery life (dependent on funding stage secured and project deliverables). Extensions may be considered on a case-by-case basis.
Reporting
Partners selected via the scheme must participate in progress meetings with IRD Pakistan and provide quarterly and project-end reports highlighting the activities conducted and outcomes delivered during the lifespan of the project.
Timelines and Selection process
Deadline for applications is the 30th September 2022, 11pm Pakistan time. The selection process will be conducted by the PIECEs Independent International Advisory Board, formed by experts and researchers from the UK, India and Pakistan. Successful applications will be informed of the results by 20th November 2022 via email and expected to start delivery of the project from January 2023 onwards.
| Call-out | Deadline | Applicants informed | Project start |
| 1st August 2022 | 30th September 2022, 11pm PKT | 20th November 2022 | 2nd January 2023 |
Safeguarding
We expect applicants regardless of the type of work developed to have considered their safeguarding responsibilities and to have suitable policies and procedures in place to protect from harm people who come into contact with the project. As per guidance, if your project works with vulnerable children or adults at risk you should:
- Establish good safeguarding policies and procedures that all involve trustees, which fit with the policies and procedures of your local authority safeguarding partner or safeguarding children or adults board (Ethics approval for projects should be submitted upon approval of your proposal within the Scheme).
- Make sure all staff and volunteers receive regular training on child protection or working with adults at risk.
- Manage concerns, complaints, whistleblowing and allegations relating to child protection or adults at risk effectively.Note: This research was funded by the National Institute for Health Research (NIHR) via its Research and Innovation for Global Health Transformation (RIGHT) programme. Grant number NIHR200824, using UK aid from the UK Government to support global health research.
PIECEs Research site visits round-up: Arts & Community Engagement week in Pakistan
After a week long site visit in India ( which you can read all about it in our previous blog post here), the team flew to Karachi, Pakistan, for another week of activities regarding our Arts and Community Engagement work package.
The three members of UK team (Paul Heritage, Arts Co-I in the PIECEs Research; Renata Peppl, PIECEs Programme Manager and Mariana Steffen, Arts Projects Manager) joined the main partner on site, IRD Pakistan, and the Arts partner, IRC, during the first week of June.
After a week long site visit in India (which you can read all about it in our previous blog post here), the team flew to Karachi, Pakistan, for another week of activities regarding our Arts and Community Engagement work package.
The three members of UK team (Paul Heritage, Arts Co-I in the PIECEs Research; Renata Peppl, PIECEs Programme Manager and Mariana Steffen, Arts Projects Manager) joined the main partner on site, IRD Pakistan, and the Arts partner, IRC, during the first week of June.
Below you’ll find the highlights of the site visits.
Clinical site visit: Karwan-e Hayat and Forum Theatre session at Korangi Zia
The team started their first day of activities with a site visit to Karwan-e-Hayat (KEH), one of the local clinical partners in the PIECEs research project, and a long-time research partner with IRD. KEH was established in 1983 as a not-for-profit welfare organization, providing psychiatric treatment and rehabilitation services for people with experience of severe mental illness (SMI). It has both private and free of charge services. Inpatients and Outpatients are seen in the same facility.
During the site visit, the team was greeted by the organisation’s directors board and marketing team. They also had the opportunity to speak with both female and male inpatients on site about their experiences and challenges faced navigating SMI. Also, there was an opportunity to meet the clinicians who will take part in the PIECEs RCT (currently in the recruitment phase).
The visit was followed by a visual presentation of the site, and Professor Paul Heritage presented QMUL’s and People’s Palace Projects work within research and community engagement, which was received with excitement by the local team.
From there, the team followed to a Community Forum Theatre performance at Zia Colony in Korangi, one of the most deprived neighbourhoods in Karachi, in which IRD has been developing a number of outreach programmes, including the PIECEs Arts & Community engagement pilot phase.
A local church had kindly agreed to host the community engagement sessions, leading to the performance the team witnessed, which engaged the audience – formed mostly by young people and women – in discussion about mental health, stigma and networks of support.
Clinical site visit: Jinnah Post Graduate Medical Centre
The second day was marked by the site visit to our other clinical partner: Jinnah Postgraduate Medical Centre (JPMC), a government-run public general hospital, with a dedicated psychiatry department treating inpatients and outpatients. One of the biggest hospitals in Pakistan, JMPC was founded in 1963. It offers services for over 500 hundred mental health patients per day.
We were greeted by the clinical team who has been working on the PIECEs pilot and RCT recruitment, and visited the sites, within both the outpatient and inpatient facilities. Although facing a number of difficulties regarding public funding, the local team stressed the importance of the activities proposed by the PIECEs research and were extremely interested in developing the ideas around arts and community engagement within the facility.
Following a successful morning, both Pakistan and UK teams spent the afternoon on a strategic planning session, where the teams reviewed the arts and community plan, proposed a timeline and the team to work on the development of the activities.
Strategic Arts Meetings and Arts Advisory Board meeting
The third day in Karachi was a very strategic one, where the UK team had the opportunity to take part in the very first Theatre and Arts Advisory Panel meeting. The panel invited by IRD is formed by local artists, performers, community engagement experts and drama academics who gave provoking and thoughtful feedback around the initial programme proposed by the PIECEs research team. The meeting was key to understanding the local arts environment, building relationships with the advisory panel and exploring synergies for the Theatre of the Oppressed pilot company.
Using Performing Arts to Change Communities – Mehfil-e-Izhar
For the fourth day of activities, IRD Pakistan welcomed public health professionals, arts students, and theatre practitioners to a vibrant day of performances and discussions at the National Academy of Performing Arts (NAPA). The event showcased the work IRD Pakistan is doing in participatory arts (theatre) aimed at social change, mental health, and improving vaccine confidence.
Co-I Paul Heritage spoke about the utilisation of Theatre of the Oppressed and Arts as a tool for socio-political change and Mohammad Waseem (Founder of Interactive Resource Center) discussed the impact of Theatre of the Oppressed methodology in tackling social issues like child marriage, and bonded labour in Pakistan. Paul Heritage Queen Mary University of London, on the occasion spoke at IRD Pakistan’s #MehfileIzhar, about the use of participatory arts research in the realm of public health; “Arts can be a powerful tool to engage and activate communities for action against social injustices.”
IRD Pakistan’s project teams of PIECEs & #JeeloDobara performed moving pieces at the #MehfileIzhar at NAPA, Karachi, exploring how people with psychosis face stigma and discrimination, along with raising awareness and understanding about vaccinations.
NAPA’s own theatre and arts students performed at IRD’s #MehfileIzhar showcase in Karachi, through a series of performances, namely ‘Parivartan’, ‘Lahazil’ & ‘Ghootan’, using the arts to highlight the impact of societal pressure and discrimination on the mental health of individuals. Both guest speakers urged public health implementers, media students and policy makers to work together to strengthen the impact of their work for creating resilience in Pakistan.
Forum theatre workshops to end the week
To close our week long visit, Professor Paul Heritage led a Forum Theatre methodologies workshop with a number of IRD’s team members and arts facilitators, inspiring processes and techniques that will be used not only on the PIECEs projects, but in other projects where community engagement and arts as a research method are required.
PIECEs Research site visits round-up: Arts & Community Engagement week in India
After working for more than one and a half years virtually alongside our colleagues from India and Pakistan, it’s fair to say we were really looking forward to being together in person as soon as rules around the Covid pandemic were lifted.
The PIECEs team managed to deliver our first in person joint research team meeting in Dubai, where we agreed plans to visit the sites and partners we were working with in Chennai (India) and Karachi (Pakistan) to coordinate together our Arts & Community engagement packages, given that our RCT research package is already progressing at a fast pace.
For these work packages, we are aiming to develop innovative methods (like Theatre of the Oppressed techniques) to diminish stigma, create community resilience, improve dialogue among healthcare workers, carers and people living with severe mental illness and ultimately impact on public policies and community awareness around Schizophrenia.
This blog post is a brief round-up of our time in India and its highlights, where Arts Co-Investigator Paul Heritage (Queen Mary University of London/People’s Palace Projects), PIECEs Research Programme Manager Renata Peppl, PIECEs Arts Project Manager Mariana Steffen have joined our main local partner Schizophrenia Research Foundation (SCARF), and our arts partner Training Sideways (EVAM) in Chennai, from 25th to 28th May, for a packed week of activities.
Street Theatre Performance: Community Engagement at its best
The team arrived on a Sunday straight into the Pondy Bazaar area, where the SCARF team was presenting a street theatre performance with a group formed by local actors, social workers and SCARF members. Performing experiences of stigma, prejudice and exclusion faced by people living with schizophrenia and their carers, the group brought together a large and spontaneous audience, which were keen on participating both physically and verbally with the performance. Leaflets with further information to generate awareness around severe mental illness and how to get help were distributed at the end of the activity.
Visit to Bhavishya Bhavan Residential Centre and Forum Theatre Performance
The second day was marked by strategic planning meetings to discuss the Arts & Community work package and timeline, and was followed by a special event at Bhavishya Bhavan Residential Centre, a SCARF managed venue which hosts inpatients with experience of severe mental illnesses, most of them women. The research team was greeted by the local members and the residents on the patio, and then everyone was led by our arts partners Training Sideways (EVAM) into a performance room for a Forum Theatre session.
Drawing from experiences and stories shared by the inpatients previously, the group presented short scenes which portrayed challenges faced by people with experience of schizophrenia. The audience, formed mostly of residents of the centre, could then intervene in moments they thought could be handled different by the characters, exploring real practice scenarios in a way that empowers them to look for solutions and change the outcome of a given experience for the better.
The strategy breaks down the barrier between performers and audience, putting them on an equal footing. It enables participants to try out courses of action which could be applicable to their everyday lives. This methodology will be the basis of most of the work developed during the Arts and Community Engagement work package of the PIECEs programme.
Awards night and NAMMA Area Launch
To mark World Schizophrenia Day, the PIECEs team was invited to join the SCARF community to present the M. Sarada Menon award and the Maitri award, destined respectively to people with experience of schizophrenia, in recognition of their efforts to cope with their challenges and move forward in life, and caregivers, including friends and family members of persons with severe mental illness, in recognition of their support to the cause.
The event was marked also by a very special launch: the brand new Namma Area, a designated hangout space for mental health service users, inaugurated at (SCARF), as part of the projects associated with the PIECEs Research.
A first-of-its-kind initiative, the Namma Area has been conceived in such a way that the service users themselves can take charge of and engage in activities which they find interesting. “We have many patients who say they are lonely and feel upset at the lack of social life. Apart from inpatients who are unable to go out, there are patients whose families hesitate to send them out since they have their own concerns. Namma Area will be a comfortable and familiar space where they can meet other people, interact and engage,” said R. Mangala, Assistant Director, Media and Awareness, SCARF.
At the new space, people can read, relax, watch movies, exercise, listen to music, play games, and can also invite guest speakers. The facility will function on the SCARF premises at Anna Nagar from 3 p.m. to 6 p.m. on Tuesdays and Thursdays, and can be used by all mental health service users free of cost.
British High Commission Event: Arts as a tool for developing community engagement and wellbeing
On the 4th day of activities, the team was part of the talk ‘Art can build resilience, resistance and recovery for people and communities’. The spotlight was on art and its impact on the community at a panel discussion organised by SCARF India and Evam Entertainment in association with the British Deputy High Commission in Chennai.
The discussion was hosted by Oliver Ballhatchet MBE, the Deputy High Commissioner in Chennai, and moderated by Sunil Vishnu, Director of Evam Entertainment, focusing on how art can build resilience, resistance and recovery for people and communities.
Speaking on the day were R Mangala (SCARF India’s Assistant Director), Paul Heritage (People’s Palace Projects Director) and Sangeetha Isvaran, founder of the NGO Katradi. Paul highlighted how art can be used as a methodology to learn about the world. “The People’s Palace Projects brings together artists, activists, academicians and audiences as we focus on resistance and transformation as well as how it is linked to creativity and mental health,” he said.
Sangeetha spoke about how the organisation focused on empathy-based transformation through the arts. “Art is often seen as an entertainment or a spiritual experience. While it is these things, it is important, something that can also help us understand and communicate better,” she said as she delved into Katradi’s work with marginalised communities across the world.
Strategic Planning, Theatre of the Oppressed Workshop and Visit to Jana Sanskitri
The final two days of our visit were filled with practical meetings and capacity building workshops: during this time, we developed a strategic plan to move ahead with the second phase of our Arts & Community engagement activities. This centres on setting up of a theatre laboratory led by local artists, the SCARF team, people with experience of schizophrenia and carers, which will then use their own experiences to create performances that can generate further community awareness and open conversations around severe mental illness.
Professor Paul Heritage also led a Theatre of the Oppressed session for local artists and the SCARF team, focusing on specific activities used in the methodology: Rainbow of Desire, and more specifically, Cops in the Head.
The UK and India team then flew to Kolkata to for a full day immersion at Jana Sanskitri Centre for Theatre of the Oppressed, led by PIECEs Artist Consultant Sanjoy Ganguly.
Jana Sanskriti Centre for Theatre of the Oppressed was established in 1985 was the first exponent of Theatre of the Oppressed (TO) in India. Today the Centre is seen as one of the most important point of references to the global community of TO. For over 3 decades JS has addressed issues like domestic violence, child marriage, girl child trafficking, child abuse, maternal& child health, primary education & health care, illicit liquor, etc. – all through theatre.
During the visit, the team had the opportunity to experience a performance, ask questions and strategise with the company’s artistic director.
Here is a video where India Principal Investigator R Padmatavi , Director of SCARF, talks about her excitement and expectations around the arts and community engagement package:
Next up, the UK team moved to Karachi (Pakistan) for another inspiring week, which we’ll cover on a next post.
Note: This research was funded by the National Institute for Health Research (NIHR) via its Research and Innovation for Global Health Transformation (RIGHT) programme. Grant number NIHR200824, using UK aid from the UK Government to support global health research. The views expressed in this publication are those of the author(s) and not necessarily those of the NIHR or the UK Department of Health and Social Care.
News: PIECEs Research featured in India media outlets
PIECEs research and our main partners in India, Schizophrenia Research Foundation and Training sideways (arts partner) made the headlines with a serie of events marking the World Schizophrenia Awareness Day (24th May).
Click on the links below to read the full articles:
PIECES – Times of India- 24/05/22
PIECES – The Hindu- 25/05/2022
PIECES- New India Express – 26/05/2022
SCARF celebrated Women’s Month with Theatre of the Oppressed games and workshop
International women’s day was celebrated at SCARF, where staff – both women and men – where invited to join a programme organised by the local PIECEs research team, presenting games and techniques used as part of the Theatre of the Oppressed (TO) methodology. PIECEs team introduced themselves and started ice breaking activities, using TO games. Following that, three different games namely Walk circumspectly, Weave without a loom and Wise workout were played. The participants appeared to be enjoying as they were loud and laughing, attracting more people to join in the later half of the program. The group left the session asking for more gatherings like this to happen more often.
Some of the feedback the participants gave during the session:
“Had a good time with everyone participating”
“Please, organize more programs like this and include all staff”
“I haven’t seen so many people participating such activities in recent years”
“Because you guys didn’t single out anyone, everyone was interested to participate”
PIECEs Newsletter 3 – Dec 2021/Jan 2022
Our end of the year newsletter is out! Make sure you read it here
Community Engagement – Theory of Change workshops in Pakistan
*Text by Hufsa Sarwar, PIECEs Research Coordinator
When our team first started brainstorming ideas around engaging the wider community through the PIECEs project, we were very clear on one thing: it was imperative to put the voices and experiences of people with lived experience of psychosis front and center and make sure that our engagement strategies are relevant and representative to our stakeholders and target populations. This sentiment is echoed through the rest of activities taking place within the project; the Lived Experience Advisory Panel which overlooks and guides the research team, the Theatre of the Oppressed workshops involving people with psychosis and caregivers, and the adaptation of the DIALOG+ app based on feedback from both services users and healthcare providers. We therefore decided to hold a Theory of Change session with a group of people with psychosis, caregivers, and healthcare providers in Pakistan to identify key challenges to support contextual solutions, and to build capacity towards a user-led and participative approach to mental health research and advocacy.
Theory of Change (ToC) is essentially a method which aims to explain how different components of a programme can lead towards a specific impact or the required change. It works on mapping out the various outcomes, interventions, indicators, rationales and assumptions one needs to be aware of to properly design and implement an evidence based programme or strategy. Since our group consisted of people with differing academic and educational experiences and backgrounds, we tried to simplify the concepts and focus the discussion around the experiences and wishes of our stakeholders within the existing system and communities that they inhabit. Co-production is a novel concept in mental health programming for psychosis within Pakistan, and taking a lead in planning different aspects of a major programme even more so for our participants.
Initially, many seemed confused; however, when the research team started asking them about their daily experiences they bloomed and started expanding upon the challenges they faced, and to which they desperately wanted solutions. People with psychosis shared that they wanted to have better treatment outcomes, achieve independence and self-reliance in their overall lives, and be able to integrate within a society which was better educated on their condition. Healthcare workers discussed how they wanted to see a visible impact on healthcare systems, with more accountability and efficient methods in place. The caregiver group, which was extremely passionate and invested in the discussion, said that they wanted to see their family members with psychosis thrive and be able to contribute meaningfully to society, and lead happier and healthier lives. They also stated the importance of accessibility to mental health services for all – caregivers need extensive support as well, along with increased social engagement and reduced stigma for both people with psychosis and their families.
The two-day session opened our eyes to many of the hidden challenges that all three stakeholder groups face; it was also a space for them to share their own thoughts around potential solutions for these issues. This was an opportunity for both the research team and participants to start developing a co-produced model for community engagement with effective, equitable, and appropriate packages of care which can utilise and strengthen access to community resources and break through the existing power dynamics. We hope to continue engaging with the wider community and amplify their voices as we start implementing our interventions.